The end of one year, the start of the next.................

I have been sitting in front of my key board for a while now, now sure where to start. Usually words come quite easy to me, but today, I am finding it a challenge.  Unfortunately there are too many people I know, who are likely to have similar thoughts to me. � To move onto the next year!�

Only a few hours to go and this awful year is over. Amazing how much hope we put onto a �New Year� , a new start , a fresh beginning , for so many people. But, how do we know that the next year is any different? Life , if we are lucky enough to experience it, just goes on, doesn�t it?

The majority of people are so engrossed in their own busy lives, and I wonder how many actually reflect on the �past year� and analyse if they could have done anything to live a better live during that year.
I have never been one for �new years resolutions�. When I was in my twenties and I guess thirties, my focus on a new year, tended to be very superficial. �Lose weight� seems to have dominated my life and from what I recall was my only ever new year�s resolution, that and getting fit. Comical really, as without trying I lost 16 pounds  this year, something I wished for most of my life. The year I came across cancer. I am not using the words, � I am fighting cancer�, as I am not fighting it.

This year, the year Kyla our eldest got engaged, got married, got pregnant. The year, Dan had his reversal operation and had the all clear from cancer. The year, we gained a son in law. We never expected to �love� a son in law, but here it is. We love him and he has become part of our family, like I never expected.

The year, Rhea moved together with Ben. The year she got a great promotion. The year, Jack bought his first property in London. All these wonderful events, we so enjoyed being part of. It is a shame it was overshadowed by my cancer journey.  

But, things happen for a reason. There is a reason why I  ended up with cancer. I don�t know what the reason was, but I do know the effect it had on myself and the rest of my family. It is a journey, as I keep saying. A journey, where not only I but my entire family have adapted to and we are all now �running with it�.  It feels quite calming.  A surreal year. Looking back I feel calm and in control.  I will continue to �do my thing�,  exploring every avenue on  alternative treatment.  My plan is to have a PET scan next August, when I finished Herceptin, providing I don�t die from heart failure first.  This brings me to an interesting observation .

The last few weeks, I have been feeling washed out, tired and without much energy, struggling for breath as soon as I walk more than 100 meters.  So here is the interesting bit, I saw a different oncologist last week when I had Herceptin. She asked me how much I weighed, which is now 70 KG, and noted that I started my treatment when I was 78 KG. Although she did not say anything else, I started to think about this afterwards. Before my first Chemo session I was weighed as part of the �how much do we pump into the veins� exercise. I am now wondering if the current dose is too high. If I am receiving the same amount of Herceptin into my body , that I received when I weighed more, could this be the reason I feel so awful and weak? Is the amount of fluid pumped into me, calculated by my weight? I lost 10% of my overall weight. Should Herceptin be reduced therefore? Why was my weight so important at the beginning?  And if weight plays an important factor when calculating how much they pump into me, why did nobody  notice that I lost some weight? I will ask �my� oncologist when I see him again the 18 January.

The last 10 days, feels like a whirl wind. A warm,fun, tiring, busy whirl wind. The last three days, Geoff has been busy dropping the kids and adoptive kids (Michael and Rebecca) off again. Michael flew back to China, Jack and Rhea back to the UK and Rebecca to Paris. Flights were delayed and others cancelled, the strike in the UK did not make travelling much easier, but everyone has made it here for Christmas and back again. A lovely time was had by all and I am not proud to say, that I gave in to chocolate and champagne and what's more important, but I did not beat myself up about it, and loved every bit of it. 

When I was first diagnosed with Breast Cancer, back in May 2016, apart from my world falling apart, I also wanted to keep my family and friends updated. I was overwhelmed with the flowers, chocolates, cards and �getting well wishes� I received, and figured that by writing a blog, everyone who was interested, could catch up and read about my my �journey�.

I have never been a person to �follow protocol�, it is not in my nature and I knew last July , after my one and only Chemo session that my journey would not be that of many other cancer patients. In this blog, I have recorded my �journey� and how and why I made the decisions regarding my treatment. I have learned so much and am still learning every day. My office is filled with new books regarding  cancer, cancer diets, �mind / body / spirit� , Cannabis, �well being� etc.
Having opted out of the traditional �chemo trail�, I am very aware that only I can monitor my progress and only I am responsible to get myself well again.  This is both frightening and exciting.

I am recording any new research or information I come across and at this stage have no idea where this will take me.

I am writing this today the 29 December, after my daughter Rhea told me that it would be good to write a short paragraph. Having had over 12000 page views, I am flattered that people are interested in my �journey� ( I can�t think of a better word) and hope that it provides informative reading.

Anke

Busy............

I am trying to have an open mind. 

I heard about Shiatsu and have been told that it might be helpful if I was to try it, which I did. I saw an Austrian lady, based locally and having no idea what to expect, I �went with it�. She talked to me about �Chakra�s�, the different �energy centres� in the body etc.  There was a lot to take in and looking back , I wish I had taken notes.  Because I didn�t, I read up about Shiatsu afterwards ( I know this is the wrong way round, but hey), and pondered over the �in a practice a practitioner uses touch, comfortable pressure and manipulative techniques�.�

( http://www.shiatsusociety.org/treatments/about-shiatsu). Well I can honestly say, that my �session� hurt like hell. It felt like she was digging her finger with all her weight into different parts of my body and then held up the pressure for much longer than I would have preferred.

As she was �balancing my chakras�, which involved her holding her hands a few inches away from my body. As she was in that position, she kept hunching over as if being punched in the stomach, making deep breathing noises at the time. I have to say that unsettled me somewhat. She looked in pain and for some reason I felt responsible for causing her that �pain�. In fact I found it disturbing and could not relax, if that is was I was supposed to do.  What did not help my experience is that I was freezing in her house. Goose pumps all over including on my kneecaps. How can anyone relax when they are shivering they are so cold? ( many Spanish houses don�t have heating and no carpets, which gives many Spanish houses a damp, cold feel, even though the outside temperature is reasonable � 15 degree)

It was recommended that I return this week then continue every other week for a session.

I think I will try another place in Malaga who also offer Shiatsu and see how that compares to my experience. If this was �normal� then at least I know and can then decide it I want to do it again. If it wasn�t and the next one is a �deeply relaxing experience�, then I know where I will go.

With Christmas around the corner, I have been busy getting organised and can feel that I am tired. I am so looking forward to having all kids ( including our adoptive kids, Rebecca and Michael) come over for Christmas and this year will be a �first one�, my girls and Rebecca are cooking Christmas lunch. That is a treat!

It's all relative...........

I had Herceptin, the 6th session!  The cardiologist�s words �I would do Herceptin this week, this one won�t kill you������. And the oncologist�s words � No need to worry about your low pulse, the lung scan is fine�.

Well the cardiologist was right, it did not kill me, I am still here����..  He wanted me to do a �stress test�, which the oncologist does not agree with, as I should not put my heart under any strain.

I have therefore decided to do my own stress test, just to keep an eye on my apparently low pulse. Interesting it is between 40-45 every morning and then increases to 60 during the day. I will start to record whenever I walk up through the garden to see if exercise of some sort increases it.

It�s a mine field really, or should I say a lottery������..

A long standing friend, who Geoff and I lived with 35 years ago, has come to stay with us for a week. He has Myiloma, which is a type of blood cancer and considered incurable, but very much treatable.  I have the highest respect on how Chris is dealing with his condition. A grueling year of chemo behind him, he is now well enough to travel, which he loves so much.  Talking to Chris makes me feel a wimp. Last autumn he was diagnosed with cancer and has been to hell and back since, which is why it is so great to see him here in Spain. How he manages to continue his travels is a mystery.  Chris, fondly known as �Mr Oprin�, does not do holidays on a beach, no, he goes deep into the amazonian rain forest with a guide, just to mention one of his many trips.
What touched me to the core, was when he said, � I want my girls to remember me when I am gone, and for this reason, I am organising holidays�.

What am I complaining of really?! I will beat this and am fine. Chris does not have this luxury.  

                                               

The million dollar question............

Do I or don't I continue with Herceptin?

I am due to have the next session tomorrow and I have not decided yet.
The blood test came back as fine.
The X-Ray on the lungs is tomorrow morning, before the Herceptin.
The heart scan I had yesterday and this is the worrying bit really.

The oncologist and the cardiologist don't understand why I am so short of breath from doing nothing.
Apparently my pulse is 'dangerously low' ( 40) when 60-100 is normal. But, neither know, why.

The cardiologist wants to do a stress test next week. The words were, ' I am not happy with your low pulse rate and we need to carry out a stress test, to see if you pulse get quicker if / when you  exert yourself a little. If it doesn't then one of the solutions would be to fit a pace maker.

Did I hear this correctly. I had chemo, with the known side effect of heart failure, which I discontinued after the first session. I then started Herceptin, which is meant to last 12 months until August 2017, with the known side effect of heart failure.
I am out of breath, unable to walk up a flight of steps without having to stop half way through, have a dangerously low pulse and the doctors think it is fine to talk about a pace maker??

It must be me, surely it would make more sense to stop Herceptin. My heart was just fine prior to starting this chemo / chemical trip, and now it is clearly not.

It would be my luck, to get rid of cancer and then die of a heart attack. Just classic!

I will decide tomorrow afternoon after my lung x-ray..................


In the meantime, I am cold! I just don't seem to get warm, and Robbie's woolly hat is on my head, literally day and night. I have given up on the wigs, they are not designed to be worn in winter. Any collar of any jacket or scarf pushes my wig over my forehead, just resting above my eyes. Not a sexy, workable look.

I heard that Chemo changes your hair, but I had not realised that this also concerns the colour.
I have never had black hair ( not to mention all the grey) in my life before. Not keen on that one either.
Although I should not complain, it has started to grow at least.

Maybe the colour will change when it gets longer. ( we can but hope!)